25 Jul

Thanks to MS I leave a Legacy Behind for my Little Ones

parentingBy Oyuki Aguilar.


I was diagnosed with multiple sclerosis on July 22, 2008.


You can forget many things in life, but not when you find out you have an incurable disease. It was in a white office, I remember it felt like someone kicked me in the stomach, and then immediately the urge to defend myself. I began hitting back with questions. “How do I fight this? Can it be controlled? What can I do to get better?” I did not have tears running down my cheeks, I remember only a bit of anger running through me. My doctor was surprised, apparently not many people react like that right away. Truth be told, I surprised myself too. I found out that day I was stronger than I thought.


I began to follow my neurologist’s instructions and took better care of my health. I told myself I was going to give this condition the battle of a lifetime by eating healthy and nurturing my body. No more canned food or processed meats, no more saturated fats, preservatives and chemicals. I slept better, I exercised and it worked, I felt much better. Two months later I received the news that I was pregnant with my first child. I finally felt afraid for the first time; I discovered quickly that my children were always going to be my weakness. I had no idea how my disease was going to play a part in my pregnancy however I was determined to fight even harder. The next year I gave birth to a beautiful healthy baby girl and one year  later I also gave birth to my handsome son. I was so busy with a toddler and a baby that I hardly had time to worry. But as children grow and become more independent, I began to have time to pick up where I left behind and being the human that I am, sometimes I would feel uncertain or depressed.


I know our lives have no warranties, I know we cannot control the future or other people’s but a part of me was seeking reassurance.


How could my essence live on for my children if…


On January 2015, as a new years resolution, I decided to write letters to my little ones  in case I would leave this earth for any reason; I wasn’t ready to go and have my voice vanish forever. I realized it was very important for me to let my kids know how magical they made my life in the most ordinary of circumstances, so I began this project of writing to them and the world around me was enhanced, I saw rich colors and beauty all around me and my words would not just flow, they would gush out of my pencils and pens to create the most lovely verses.


I found delight in carpool, bathing my children, dinner… I observed simple family moments and they were all filled with wisdom and very important teachings to capture.


I thought of leaving behind a sort of manual for a good and honorable life. A document for my son and daughter to turn to for comfort and guidance.

I wrote to them about cultivating the qualities of humility and  kindness, wisdom and courage; all the ingredients for a successful and happy life.

I compiled the letters and added my own artwork: fresh and colorful paintings. My sister Jadyn is a graphic designer and she put it all together in a stylish petit book to lure them to read (and not be scared or bored.)


I liked the results so much, I decided to share them with others in the hope they would appreciate these everyday adventures and maybe think about writing letters to their loved ones as well. We are not eternal, but our sentiments can live and inspire on through paper and hard drives.


My MS is under control now but still, it is a very unpredictable autoimmune disease and you never know how it’s going to creep up on you, so I stay vigilant and grounded to the present. I stay mesmerized by wonderful people and my amazing surroundings.


I thank my MS everyday for giving me the generous gift of awareness and the power of voice, so that I can leave my essence to my family, friends and generations to come.

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